Current Events > I still have no clue whether Wednesday will be my last chemo treatment or not.

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Doom_Art
09/17/18 3:06:22 PM
#1:


I'm on a regimen called ABVD for Hodgkins Lymphoma

The A-drug caused some damage to my heart after a few treatments so we had to pull it

So for two treatments I had just BVD

Eventually we found another chemical that they could give me to shield my heart from the harmful effects of this A-drug. So I've been getting that for months now.

My oncologist was wondering if I would require an additional month of treatment to make up for my compromised treatments.

She put me in touch with a clinic called Princess Margarets. One of the best cancer clinics and research centers in the world. I would talk to several specialists and they'd look at my case and let me know if I would need additional treatments or not.

They called and wanted me to do a teleconference with them

Unfortunately they booked for the day after my chemo. I told them this and mentioned that I wouldn't be able to do it as I'd be sick.

They said okay and they'd reschedule

That was two months ago. I've heard nothing from them since

I've told my oncologist and she said she'd reach out to them.

I've tried calling and leaving messages

No one's responded

So now I'm going into treatment in a few days and I have no fucking clue if I'm done or not. I likely will have no idea for another few weeks

I'm fucking pissed off. I'm ready to be done. I've had six months of this shit, I've lost my hair, I've been sick, I've been unable to work or go to the gym. I want to start making plans

I can't make plans and start getting back to my life if I'm trapped in this freaking limbo

So beyond annoyed and stressed out right now

/rant
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Dash_Harber
09/17/18 3:07:34 PM
#2:


That sounds really fucking annoying.

How are you feeling, anyway?
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Doom_Art
09/17/18 3:19:38 PM
#3:


Dash_Harber posted...
That sounds really fucking annoying.

How are you feeling, anyway?

Feeling pretty good all things considered.

Apart from some anticipatory nausea before treatments and some nausea and tiredness after treatment for a few days I feel great

My issues at this point are mostly mental

Isolation is starting to get at me tbh. I have very supportive and wonderful friends and family but they work and shit. I'm at home, unable to work or go to the gym, and have to avoid or be extremely careful in public spaces.
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SSJCAT
09/17/18 3:23:45 PM
#4:


sorry man i didnt know you were sick i hope you get this worked out.

do you happen to live in a marijuana legal state? i heard it helps a lot with chemo side effects
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Doom_Art
09/17/18 3:32:05 PM
#5:


SSJCAT posted...
sorry man i didnt know you were sick i hope you get this worked out.

do you happen to live in a marijuana legal state? i heard it helps a lot with chemo side effects

Thanks man. Yeah I've known since February and have been in treatment since April

Ups and downs lol

Funnily enough in Ontario (where I live) pot will be legal in about a month

I've often thought of asking for medical marijuana but the meds they already give me mostly keep me managed fine
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Alpha218
09/17/18 3:37:24 PM
#6:


If youre trying to get the cancer out of your life why do you still post on CE dude
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green butter
09/17/18 3:38:01 PM
#7:


did you ever end up buying a switch lol
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Doom_Art
09/17/18 3:40:40 PM
#8:


Alpha218 posted...
If youre trying to get the cancer out of your life why do you still post on CE dude

*sensiblechuckle.gif*

green butter posted...
did you ever end up buying a switch lol

Yesss it's been a welcome comfort while I've been waiting in treatment and bedridden
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SSJCAT
09/17/18 3:41:15 PM
#9:


Doom_Art posted...
Alpha218 posted...
If youre trying to get the cancer out of your life why do you still post on CE dude

*sensiblechuckle.gif*

green butter posted...
did you ever end up buying a switch lol

Yesss it's been a welcome comfort while I've been waiting in treatment and bedridden

feel free to add my friend code homie
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kingdrake2
09/17/18 3:41:38 PM
#10:


Alpha218 posted...
If youre trying to get the cancer out of your life why do you still post on CE dude


it helps him i think (might be wrong).
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Tyranthraxus
09/17/18 3:42:34 PM
#11:


Alpha218 posted...
If youre trying to get the cancer out of your life why do you still post on CE dude


Because to get rid of the cancer you have to inject yourself with something so horrible that it kills the cancer while killing you--but doesn't kill you all the way, just enough to make all the cancer die while leaving you with the barest scraps of a miserable life.
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Doom_Art
09/17/18 3:42:59 PM
#12:


kingdrake2 posted...
Alpha218 posted...
If youre trying to get the cancer out of your life why do you still post on CE dude


it helps him i think (might be wrong).

It is good to give me some activity/socialization when everyone else I know is unavailable

Plus in spite if the crap I do like the community here a lot
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Hawaiian_punch
09/17/18 3:43:07 PM
#13:


Best of wishes man
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myzz7
09/17/18 3:44:54 PM
#14:


Alpha218 posted...
If youre trying to get the cancer out of your life why do you still post on CE dude

because TC fights cancer with another cancer called gamefaqs.gamespot.com
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GiftedACIII
09/17/18 3:46:40 PM
#15:


Hope everything turns out alright
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E32005
09/17/18 3:51:39 PM
#16:


GiftedACIII posted...
Hope everything turns out alright

This
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Sariana21
09/17/18 4:17:58 PM
#17:


Dealing with medical personnel is the worst. I swear they don't know if they're coming or going--it's a good thing the admin people aren't in charge of the actual treatment decisions. I hope they figure out your situation soon and that you get the news you need to get on with your life.
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Doom_Art
09/17/18 9:34:23 PM
#18:


Sariana21 posted...
Dealing with medical personnel is the worst. I swear they don't know if they're coming or going--it's a good thing the admin people aren't in charge of the actual treatment decisions. I hope they figure out your situation soon and that you get the news you need to get on with your life.

Thanks man

Yeah my oncologist and her nurse are wonderful but dealing with the hospital administration is endlessly annoying
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0AbsoluteZero0
09/17/18 9:59:05 PM
#19:


Hang in there bro, youve got this
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