LogFAQs > #964089029

My dad was diagnosed with a brain tumor in late April 2020. He didn't last 11 months. It went from a grade 3 astrocytoma to a grade 4 multiform glioblastoma. Initially it was a 10 year prognosis, but then it turned to 1.5 years after they figured out it was a wild type instead of a mutant. Wild type does not respond well to treatment. My dad wasn't growing his tumor for a while after radiation and chemo, but he just couldn't take the chemo well and had complications after the initial surgery. He was just so tired from the medication and his condition and he was in bed 18bhrd a day. He might have gotten a cyst from that, but he had to get a surgery to drain it and give him a shunt. There's some other complications he had, but I'll say it later.

Anyway, my advice to you is:
1. Tell your family asap. Do not wait for the last minute. Get this out of the way.
2. Stop working.
3. Stay positive and motivated Nothing is guaranteed, but being positive and motivated helps. Do as much as you can independently by yourself. It will help a lot.
4. Eat as healthy as you can and be as active as you can. You will likely prescribed on a lot of medication. Seizure, appetite (if you need it), and a steroid to reduce the brain swelling. Have family go over the side effects. The steroid gives you a lot of energy, but it can make you an insomniac, give you hiccups.. and worst of all, it will spike your blood sugar. You could get type 2 diabetes. You need to be active to reduce blood sugar spikes and anything else. Your tumor or the combination of drugs might also make you more drowsy, but do your best not to stay in bed all day.
5. Look for clinical trials asap. Talk to your hospital and see if they have any available as well as any tier options. The neurosurgeons can have connections Have you or a family member do research. Car T cells could work. I tried to get my dad into City of Hope in California but it was too late. You could be a candidate. The sooner you contact, the more likely you could get in. They also have strict requirements like shunts could be a deal breaker and they will test your cognitive ability.

6. Diet part 2. This hasn't been peer reviewed with humans.. But it has some studies with mice, and it has worked for at least one guy with a brain tumor. A ketogenic diet could potentially shrink the tumor and make it small enough to be operable. Cancer feeds off carbohydates.

https://www.braintumourresearch.org/info-support/treatment/ketogenic-diet-therapy-for-brain-tumour-management

I literally read this story last month when it came out. Some dude had an inoperable tumor that gave him a year to live. He skipped radiation and chemo and tried the diet and it shrunk to the point where he was able to take it out. He hasn't grown the tumor since. He is still alive I think. Talk to your doctor about it. Maybe give it a shot.
https://www.the-sun.com/health/4801717/man-cancerous-tumour-survived-switching-diet/

If I could save you when I failed to save my dad, if would mean the world to me