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TopicI still have no clue whether Wednesday will be my last chemo treatment or not.
Doom_Art
09/17/18 3:06:22 PM
#1:


I'm on a regimen called ABVD for Hodgkins Lymphoma

The A-drug caused some damage to my heart after a few treatments so we had to pull it

So for two treatments I had just BVD

Eventually we found another chemical that they could give me to shield my heart from the harmful effects of this A-drug. So I've been getting that for months now.

My oncologist was wondering if I would require an additional month of treatment to make up for my compromised treatments.

She put me in touch with a clinic called Princess Margarets. One of the best cancer clinics and research centers in the world. I would talk to several specialists and they'd look at my case and let me know if I would need additional treatments or not.

They called and wanted me to do a teleconference with them

Unfortunately they booked for the day after my chemo. I told them this and mentioned that I wouldn't be able to do it as I'd be sick.

They said okay and they'd reschedule

That was two months ago. I've heard nothing from them since

I've told my oncologist and she said she'd reach out to them.

I've tried calling and leaving messages

No one's responded

So now I'm going into treatment in a few days and I have no fucking clue if I'm done or not. I likely will have no idea for another few weeks

I'm fucking pissed off. I'm ready to be done. I've had six months of this shit, I've lost my hair, I've been sick, I've been unable to work or go to the gym. I want to start making plans

I can't make plans and start getting back to my life if I'm trapped in this freaking limbo

So beyond annoyed and stressed out right now

/rant
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