LogFAQs > #968953178

Sorry if this isnt the appropriate place, I was wondering if you knew which subtype of EDS she has/if that was confirmed via genetic testing?
EDS on its own is so hard because for almost everything is simply treat each symptom as you can which is infuriating for a systemic disorder. Add in all the comorbidities that often come with it (it sounds like your wife has multiple of those) I absolutely understand how hard it is in these situations to admit you are just too overcome with pain and hopelessness, because realistically there is nothing that can fix you. So Im glad you find your wifes assessment of her situation as valid- many would hold it against their spouse.
You're a really good dude. You have a long future ahead of you so dont feel guilty about thinking about it now, its possibly the only advantage of her potentially being able to plan when she goes. You have her to ask if you need advise/opinions/reassurance. Its insane how much people with these kinds of disorders have to advocate for themselves to the healthcare world- and I guess even farther into the situation, now the government. I hope things can be resolved in a reasonable amount of time. And that you both enjoy your time together.