Current Events > Twitter thread from a parent with a child who has severe mental illness

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COVxy
10/23/21 1:01:21 PM
#1:


https://twitter.com/causalinf/status/1451920161242591240?t=uOtnQ16iICJ9Sn-YifeSmg&s=19

You'll have to click into it to read the whole thead. It's very long so I can't post each tweet.

This is the type of situation that drives my insistence that we need to bring back state mental institutions. We need to heavily fund mental healthcare.

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UnholyMudcrab
10/23/21 1:03:43 PM
#2:


Not to brush him off, but I feel there has to be a better way to tell this story than by responding to your own tweet 24 times
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s0nicfan
10/23/21 1:06:15 PM
#3:


UnholyMudcrab posted...
Not to brush him off, but I feel there has to be a better way to tell this story than by responding to your own tweet 24 times

Twitlongers are a thing, but more fundamentally Twitter was just never designed for actual extended conversations. This is the kind of thing that would have probably been better served as a Reddit post.

On to the actual topic, though, how do we bring back State institutions without them falling into the same sort of negligence that they did before? That's not a condemnation of the idea, by the way, just a legitimate question I don't have an answer to.

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MedeaLysistrata
10/23/21 1:15:45 PM
#4:


Shame he doesn't want to take the meds. I get it though. He might think he is seeing "reality" in his psychotic state... idk. Hope he takes his meds at some point. His delusions sound very intense but it doesn't mean he will be like that forever. I was also unmedicated for a while around that age...

I get the value of being committed but my personal view is that just hiding such people from society's eyes isn't really a good solution. Idk.

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MrFingers07
10/23/21 1:16:56 PM
#5:


Severe mental illness and the law part 400: last night I look on my security camera and there are officers at my house looking around but I wasnt there. I panic thinking something has happened with my son so call the police

The dispatcher tells me did you know your son has been calling the police all day? She said in this ominous tone. I said no I didnt but what was going on. Hes been spouting absolutely bizarre things on social media for months abt conspiracies involving the Freemasons .

He goes between the Freemasons, something about will smith and jada pinket smith, and a nonstop claim about a ring of child molesters throughout Waco. Its all he talks about. Hes shifted to severe drug use and is homeless, and has been arrested several times

So I thought this is it. This is the phone call. Theyre going to tell me my son is dead. She said she would prefer the sergeant call me so I urged her to make it fast. A few minutes later he called. Our son had been arrested running naked down the street screaming

They picked him up and then when they got him into the car, he couldnt pull his beat the insanity Turing Test which hes mastered so that for brief moments and he is lucid and convincing. No, his thoughts were disorganized and so they took him to the hospital.

They gave him emergency detention order allowing this to happen, but here is what is so insane he was in jail last week for shoving someone at a grocery store yelling abt some sort of conspiracy, and they wouldnt even give him an assessment

My wife is his legal guardian (I just couldnt do it again emotionally, plus it all just seems pointless as as a mechanism, guardianship hasnt bought us one thing). But she couldnt even get them to give him a psychological assessment in jail bc hes 20.

When she was able to finally help get him transferred to a hospital outside of town, which took her about three days of nonstop work, to a place that had promised to reserve a bed, the transport gets him there only to learn the judge hadnt done some technical thing

So they couldnt take him. Took him back to Waco and best I can tell, just let him out at some random place. On Thursday he texts me and says all this horrible stuff happened to him in jail, so I was absolutely freaked out. Canceled classes, told him we had to meet asap

Told him our focal point for us (Sergios burrito truck, my favorite) since his phone was abt to die, and then went there. For four hours I sat there. He never showed. My wife said he went there instead and wasnt acting like anything had happened in jail, and he never said again

He had a schizoaffective diagnosis from a lengthy stay at a public hospital. I have the most confidence in that bc of the patient collection of data and repeated observation in a more controlled environment. Plus the medication clozapine and lithium actually made him function

On clozapine, the guy is just completely himself. No psychosis, no agitation, anger, hostility, hes funny again, intelligent, kind, thoughtful, talkative. But off of it, he doesnt resemble anyone Ive ever known or ever heard of. So why not take clozapine, an antipsychotic?

Because god told him not to bc it will interfere with his rap career. Dont get me wrong, his music is phenomenal. Its heart breaking, raw, true with excellent beats he got from who knows where, with very creative overlays of his voice. Its brilliant actually.

But this god character is driving me insane. Just take the medication! Why are you burning your life down, your familys down, and harassing this entire community like this? The share of public resources consumed by my son EASILY exceeds 99% of the rest of the population in Waco

If you told me that per capita, he has consumed the most, I wouldnt even be surprised. I would love to meet the sad soul with more and give their family a big hug and a stiff drink. We all won this perverse lottery no one even knew they were selling tickets for

Its hard to convey the failures weve encountered bc they defy imagination. Heres one. He had a schizoaffective dx based on a lengthy stay. One day, he gets an emergency detention order for his stuff and is transferred to a hospital over the weekend

A doctor working there on contract sees him. No review of records, not even sure if they could get the records honestly, and wont talk to us bc at that time we werent his guardians. But even if he couldve, they have no incentive to do they tend to ignore us

He spends 15 min on a Saturday reviewing him, writes down AND TELLS our son that our son doesnt have schizoaffective disorder, just anxiety and gives him a script for Xanax. Just like that. Then my son says like now Ill never take that medication! And then others hear too

So this week, some random clerk made some suspicious comment to my wife trying to get mental health deputies to do some impossible Hail Mary and says do you even have a schizophrenia diagnosis? She said. I wouldve lost it. Do we have a diagnosis?! Good lord is this a joke?

I am not one of these who says the system is broken. I will just say that I am to the point where I do not even think its solveable whatsoever. The civil liberties afforded to the severely mentally Ill are ironclad rights. You cannot hospitalize involuntarily without threats

Which means in our case, our son will have to literally hurt someone in the community before we get any help. He just commit violence against someone or himself BEFORE HE GETS HELP! Its so absolutely backwards I dont even have words.

Advocates for the civil liberties think they are doing them favors but arent there when theyre homeless, in jail, prison or dead. Theyre doing their own moral dogoodery while the rest of us are barricading our doors wondering if we are going to get hurt while we sleep.

I just cant even wrap my head around sometimes any of this. Im just a normal adult. My wife is a therapist so she navigates it better but Im just a normal guy. And this is some kind of Kafka like beaurecratic maze that everyone has an opinion abt which door is the right door

But in reality, no one actually knows which door is the right one; theyve just heard of another door so they tell you that one. But then you exert countless hours searching for the said door, you get there, you open it and it opens to a brick wall. There was never a door there

I just dont see the end game anymore. I dont see how this ends if he doesnt get long term residential care for substance abuse and treatment of his schizophrenia. None of these fake silly local things that dont do anything. He needs long term residential care. But we cant

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COVxy
10/23/21 1:23:13 PM
#6:


s0nicfan posted...
On to the actual topic, though, how do we bring back State institutions without them falling into the same sort of negligence that they did before? That's not a condemnation of the idea, by the way, just a legitimate question I don't have an answer to.

Much of the objections that drove the deinstitutionalization movement were pretty much purely political.

Like, there's a reason people almost universally see electroshock therapy (ECT) as some sort of completely barbaric practice, while it remains a good treatment for some patients. Because it looks very scary and graphic, especially when acted out on screen in unrealistic manners. The deinstitutionalization movement wasn't the progressive panacea that people think it was.

MedeaLysistrata posted...
I get the value of being committed but my personal view is that just hiding such people from society's eyes isn't really a good solution. Idk.

The point is not to hide individuals from society, but to help them when they don't have the ability to help themselves. To force a treatment regime until the patients are well enough to maintain it on an outpatient basis.

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ScazarMeltex
10/23/21 1:25:47 PM
#7:


s0nicfan posted...
On to the actual topic, though, how do we bring back State institutions without them falling into the same sort of negligence that they did before? That's not a condemnation of the idea, by the way, just a legitimate question I don't have an answer to.
Providing them with adequate funding is a start.

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Shablagoo
10/23/21 1:39:28 PM
#8:


MedeaLysistrata posted...
Shame he doesn't want to take the meds. I get it though. He might think he is seeing "reality" in his psychotic state... idk.

100%, Ive had these types of episodes before.

@MrFingers07 thanks for transcribing all that


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TheVipaGTS
10/23/21 1:42:01 PM
#9:


Another reason why we need to increase funding towards social programs to assist cops in situations like this. And just overall increase mental health support as a whole.

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COVxy
10/23/21 1:44:24 PM
#10:


TheVipaGTS posted...
Another reason why we need to increase funding towards social programs to assist cops in situations like this.

This seems like it has pretty much nothing to do with the topic at hand.

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MedeaLysistrata
10/23/21 1:46:54 PM
#11:


COVxy posted...
The point is not to hide individuals from society, but to help them when they don't have the ability to help themselves. To force a treatment regime until the patients are well enough to maintain it on an outpatient basis.
That makes sense, but can't that be done in a standard psych ward?

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COVxy
10/23/21 1:48:07 PM
#12:


MedeaLysistrata posted...
That makes sense, but can't that be done in a standard psych ward?

Normal psych wards don't have the infrastructure for long term commitment.

It's a combination of infrastructure and law changes to allow for this type of thing.

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darkprince45
10/23/21 1:54:06 PM
#13:


That about sums up mental health here. We show up, clearly somebody going through an episode. Unless they outright say theyre suicidal, theres nothing we can do.

So many people they just need their medication but they dont take it. As soon someone is legally adult theres nothing you can do.

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TheVipaGTS
10/23/21 1:54:45 PM
#14:


COVxy posted...
This seems like it has pretty much nothing to do with the topic at hand.
yes it does. Someone with mental health issues calling the cops all day? It didnt go wrong this time but it has a lot in the past. Its just an example of the fact that it happens and I see no issue raising that concern overall. Things like this can help shed light on multiple issues. The person mentions in the thread about an earlier instance where he was arrested and jailed. He could have and should have gotten help then. If someone more in the know was involved it could have happened. This isnt an anti cop post like you seem to think it is.

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MedeaLysistrata
10/23/21 1:55:32 PM
#15:


COVxy posted...
Normal psych wards don't have the infrastructure for long term commitment.

It's a combination of infrastructure and law changes to allow for this type of thing.
I'm just curious about what a long term place would have that psych wards don't have. I think my dad wants me to go to one.

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COVxy
10/23/21 1:57:59 PM
#16:


TheVipaGTS posted...
He could have and should have gotten help then. If someone more in the know was involved it could have happened.

There is no help that he could have gotten in the current system.

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NecroFoul99
10/23/21 2:00:04 PM
#17:


s0nicfan posted...
On to the actual topic, though, how do we bring back State institutions without them falling into the same sort of negligence that they did before? That's not a condemnation of the idea, by the way, just a legitimate question I don't have an answer to.
I dunnomaybe funnel some of our defense budget rather than leaving it up to the voters as a more taxes or fewer facilities argument?

Its always the same thing. Voters make this shit happen because theyre manipulated into the same position every time. Higher taxes? No! Okaysince you dont want mental health facilities, well just close or defund them.

Meanwhile, our defense budget, aka the status quo, keeps its money and often grows.

How many homeless have we all seen who just stand there and rant? All the friggin time. Its depressing. All those homeless mentally distressed people.

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TheVipaGTS
10/23/21 2:00:11 PM
#18:


COVxy posted...
There is no help that he could have gotten in the current system.
right. Im clearly advocating changes to that system. Social workers working with cops would be part of that.

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COVxy
10/23/21 2:01:22 PM
#19:


TheVipaGTS posted...
right. Im clearly advocating changes to that system. Social workers working with cops would be part of that.

They wouldn't be able to do anything for the dude. It's not like this dude hasn't been heavily in contact with all of the mental health infrastructure that exists. The primary issue is that there's no such thing as involuntary commitment anymore.

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#20
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TheVipaGTS
10/23/21 2:02:46 PM
#21:


COVxy posted...
They wouldn't be able to do anything for the dude. It's not like this dude hasn't been heavily in contact with all of the mental health infrastructure that exists. The primary issue is that there's no such thing as involuntary commitment anymore.
Ok? Im not sure why youre arguing with me. We are in agreement. Im just adding that part of the change will be to have social workers work with cops to help that change in the system.

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COVxy
10/23/21 2:05:00 PM
#22:


shockthemonkey posted...
Hahahahaha boy I wish I couldve just told the mental health facility that

I'm not talking about emergency holds, which don't really serve the same purpose.

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#23
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BeyondWalls
10/23/21 2:27:26 PM
#24:


The dispatcher tells me did you know your son has been calling the police all day? She said in this ominous tone. I said no I didnt but what was going on. Hes been spouting absolutely bizarre things on social media for months abt conspiracies involving the Freemasons .

He goes between the Freemasons, something about will smith and jada pinket smith, and a nonstop claim about a ring of child molesters throughout Waco. Its all he talks about. Hes shifted to severe drug use and is homeless, and has been arrested several times

This reads like the prelude to another Sandy Hook tragedy.

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