Current Events > My wife is applying for MAID (Medical assistance in death).

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ZMythos
09/27/22 10:59:37 PM
#51:


So sorry that your wife has had to go through life with these complications.

I can't picture what you're going through. I remember a relative slowly dying of cancer, but that's different from a significant other.

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g0ldie
09/27/22 11:08:55 PM
#52:


I'm really sorry to hear, TC.

whenever you post about your wife, it's clear how much you love her.

I don't really know what to say, but yea, I hope have whatever comfort you both can find from this, with it being something she wants to get ahead of...I could also see how it can feel worse in other ways.

I'm just sorry to hear.

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thx1138
09/27/22 11:12:29 PM
#53:


Im so sorry, very sad
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Jeff_AKA_Snoopy
09/27/22 11:58:43 PM
#54:


GuerrillaSoldier posted...
i remember you sharing some stuff on lue a long time ago (i think?) so it's crazy to hear about. very sorry for your situation but i feel more saddened that she's had to deal with all of what she had to. it sounds terrifying and tiring and painful...so...in a way, it's at least good that she won't be suffering.

still a very difficult situation, and very sorry that it has to be this way. stay strong.

Yeah. I'm not in a position to ask her to go through any more pain. She has done literally everything she could, seen professionals all over. There's just nothing left. She has a meeting with a hematologist here and if they have some sort of crazy treatment to try then MAYBE we try it? It is nearly impossible for even like 50% of her shit to be dealt with.

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Nemu
09/28/22 12:02:14 AM
#55:


Rather tragic decision to have to make, but living in constant misery cannot be something anyone should be forced to go through. Being able to have the option to peacefully go out on your own terms is much better than any of the alternatives.
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--Zero-
09/28/22 12:14:01 AM
#56:


You're a great husband to support your wife in her decision. I'm really sorry to hear you have to go through that and it's great you have a strong support system.

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Dan_Haren-
09/28/22 12:17:52 AM
#57:


If she has not had any pain management and she's in constant pain she should definitely see a pain specialist. There's many ways to address pain beyond just opiates.
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darkmaian23
09/28/22 5:07:49 AM
#58:


Jeff_AKA_Snoopy posted...
She has a meeting with a hematologist here and if they have some sort of crazy treatment to try then MAYBE we try it?
I hope this appointment works out and that things improve for you and your wife. I'd imagine that's not very realistic at this point, but I'll keep a good thought for the two of you none the less.

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TomClark
09/28/22 6:04:54 AM
#59:


Shit, I am so so sorry to hear that.

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Lorenzo_2003
09/28/22 6:13:01 AM
#60:


I am very sorry for you and your wifes suffering. It is good that you have each other.

Not sure if this will help your contemplations at all, but I also had someone very close to me in a terminal situation with a lot of pain and letting them go was painful but IMO the right thing to do because it was for their sake. Whatever you decide, Im sure you will make the right choice for you and your loved ones.

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MalpaisLegate
09/28/22 10:59:24 AM
#61:


I'm sorry about your wife's situation, and I'm even more sorry to know that someone like yourself, who I think most people can agree is one of the nicest, friendliest people on this entire site has have such a shitty situation happen at a fairly young age. I hope things go as well for you as they possibly can given everything that's happening.

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pauIie
09/28/22 11:04:17 AM
#62:


so sorry to hear this. i couldn't imagine.

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The_shibe
09/28/22 11:05:39 AM
#63:


Jeff_AKA_Snoopy posted...
To make a long story very short, my wife has a multitude of complex medical problems which has no real treatment. Chief among these is Ehlors Danlos which causes her body to rip and tear very easily (her body does not produce and use collagen correctly) and something called MCAS, which makes her VERY allergic to a whole range of different items. From allergies to many food items to medicines to daily products like soaps and fragrances.

On top of this now it seems that she has some sort of immunosuppression disease which leads her to being consistently battling infections and other illnesses. Ehlors Danlos typically ends up killing someone by one of their major organs ripping. She's already had a lot of heart problems which has led to her having a pacemaker in her mid 20's, for example. She has no real pain management available and as such she is consistently in pain and discomfort without a plan to alleviate such things.

Rather than wait for further deterioration, my wife is applying for Medical Assistance in Death. Multiple doctors have to look into her medical history and agree that there is no opportunity for things to improve in a significant way, and then you wait at least 90 days after that. You can change your mind at any point and you can choose to it at any time after those 90 days if you are accepted.

I am this odd mixture of devastated but also happy my wife will not need to live in constant pain? I'm not sure how you even START doing all this as the one who will be left. I have a wonderful family and support structure around me. I WILL be fine... but I'm not always fine right now even though it isn't an assured thing yet.

Why make the topic? I dunno, help me work out my own shit about it? Maybe talk with some people who have gone through similar shit? I dunno.

I am very sorry to hear this, Snoopy.

Talking about things always helps. Sometimes you don't even need an answer, just venting and saying what's on your mind makes a hell of a difference. A lot of people are here for you, man, and many of us here appreciate you a lot.

If you need an ear, many of us are here.

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lww99
09/28/22 11:10:58 AM
#64:


Im so sorry. Thats terrible

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Cleo_II
09/28/22 11:20:40 AM
#65:


Im so sorry, I truly have no words. You always seemed one of the kindest people here and Im so sad to hear about what you and your wife are going through.
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teep_
09/28/22 11:54:53 AM
#66:


I'm so sorry, TC. No matter what happens, I hope you and your wife both find peace

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spikethedevil
09/28/22 11:55:31 AM
#67:


*hugs TC*

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Jeff_AKA_Snoopy
09/29/22 1:40:28 AM
#68:


My wife is rather at peace with the whole thing. She would be ready to take this plunge tomorrow. We are in these opposing positions where she is ready for it tomorrow and I'm kinda glad that it is a bit of a longer process so I get to spend more time with her.

I go between times of being very at peace with it all and breaking down into tears. I assume it will be like this for awhile.

My wife has asked her psychiatrist if I can start being part of their time together and maybe utilize his services for a little while as needed. I'm a big believer that everyone could benefit from talking with a mental health expert so I should take my own advice, lol.

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DrizztLink
09/29/22 5:39:57 AM
#69:


Jeff_AKA_Snoopy posted...
I go between times of being very at peace with it all and breaking down into tears. I assume it will be like this for awhile.
Grief is by no means a linear process.

The Kubler-Ross "denial - anger - bargaining - depression - acceptance" thing is a guide of common emotions in grief, not a set of directions.

Fluctuating emotions are normal.

I agree with your wife's idea, talking with someone can only help and a joint session is a great start.

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Jeff_AKA_Snoopy
09/30/22 1:58:33 PM
#70:


DrizztLink posted...
Grief is by no means a linear process.

The Kubler-Ross "denial - anger - bargaining - depression - acceptance" thing is a guide of common emotions in grief, not a set of directions.

Fluctuating emotions are normal.

I agree with your wife's idea, talking with someone can only help and a joint session is a great start.

Yeah I have no issues working through everything with the help of a professional. I have a feeling I will need it more like after my wife passes as opposed to now but any and all help will be welcomed.

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DrizztLink
09/30/22 2:01:33 PM
#71:


Jeff_AKA_Snoopy posted...
Yeah I have no issues working through everything with the help of a professional. I have a feeling I will need it more like after my wife passes as opposed to now but any and all help will be welcomed.
I recommend the joint sessions in order to build trust with a specific therapist.

You could see the same one for the joint sessions and for your own, both for now and for later.

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#72
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Cocytus
09/30/22 2:21:21 PM
#73:


Very sorry. Hope things go as easy as possible.
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ShotWaifu
09/30/22 2:32:53 PM
#74:


Tag
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Jeff_AKA_Snoopy
10/02/22 7:56:01 PM
#75:


Cocytus posted...
Very sorry. Hope things go as easy as possible.

She is in the beginning parts of it all. It's possible that the doctors she discuss this with disagree and she has to try again in a few months. For the few others she has chatted with who are in similar types of situations there is not really any guarantees.

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MedeaLysistrata
10/03/22 10:02:13 PM
#76:


It's sad that this has to be the best option. I hope you can enjoy the rest of your time together.

I have actually been thinking of putting in a MAID request for myself in March when they open it to mental illness here. I can only imagine how hard it must have been for your wife to settle on this as her ultimate choice...

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#77
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Ilishe
10/03/22 10:15:49 PM
#78:


Oh man. This is the saddest. Sorry.

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#79
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spikethedevil
10/05/22 4:09:17 AM
#80:


[LFAQs-redacted-quote]


Um maybe read things properly @ArmieBuff

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Jeff_AKA_Snoopy
10/05/22 6:16:56 PM
#81:


I have told my employers about the situation. They are very understanding and supportive. I love them. ^_^

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#82
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Kakapo
10/05/22 8:09:26 PM
#83:


I am so sorry, TC. I cannot begin to imagine what you are going through.

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#84
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spikethedevil
10/07/22 12:51:33 PM
#85:


[LFAQs-redacted-quote]


Please read the OP. @ArmieBuff its not a singular disease.

TC I hope you have good people around you that can help you get through this and enjoy the time you and your wife have.

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Jeff_AKA_Snoopy
10/07/22 4:26:14 PM
#86:


Yeah I have a wonderful support system between my family and friends.

My wife is still seeing specialists so she hasn't completely given up on all potential forms of support and treatment. If something does pop up that may improve quality of life significantly she would likely try it... it's just quite unlikely.

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spikethedevil
10/07/22 4:40:58 PM
#87:


Jeff_AKA_Snoopy posted...
Yeah I have a wonderful support system between my family and friends.

My wife is still seeing specialists so she hasn't completely given up on all potential forms of support and treatment. If something does pop up that may improve quality of life significantly she would likely try it... it's just quite unlikely.

Fingers crossed something crops up for her.


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Jeff_AKA_Snoopy
10/08/22 1:29:09 PM
#88:


I'm going to speak about this more with our therapist (my wife's therapist has agreed to see us together as we go through this process) is just this guilt I feel about how my mind is already trying to plan out what to do after my wife passes away.

Not in the sense of like, funeral arrangements and things of that nature, but beyond that. I think about how I will basically be a 40 year old man alone and how when I'm ready to date again, that is just an entirely different world. Then I hate myself for even thinking about that sort of stuff because my wife has not passed away yet and maybe this process doesn't even happen how we think and it isn't an option for her right away.

My wife has said she hopes I can build a life with someone else after she passes and whatnot so it isn't like something she ALSO hasn't thought of? But I just feel tremendous guilt anytime my mind wanders into that line of thinking. Like I know I can't help that as I HAVE to be thinking about what happens after for my own mental health, but it just makes me feel like a fucking asshole. =/

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#89
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Jeff_AKA_Snoopy
10/10/22 1:27:51 AM
#90:


I actually spoke with my wife about my guilt and she just kinda laughed it off and said that it's totally cool that I'm thinking about the future.

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indica
10/10/22 2:35:44 AM
#91:


gunplagirl posted...
May you and her find peace in this process.


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DirkDiggles
10/10/22 2:43:37 AM
#92:


Sorry to hear about that Snoop. Have you thought about hospice yet?

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Jeff_AKA_Snoopy
10/11/22 11:16:32 PM
#93:


My wife is not to that point.

She had her meeting with the first doctor as part of this process today. She was very nice and believes my wife has done all she could to treat what ailments she has.

Now we gotta wait for a second doctor to come and see her and they will confer together to see if she deserves to utilize the program.

So assuming she is given the go ahead she can choose to let go just into the New Year.

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Jeff_AKA_Snoopy
10/13/22 1:32:47 AM
#94:


Tomorrow I will be in a joint therapy session with my wife. She has been working with this therapist for a year and she wants me to have some sessions as well.

I'm a strong believer that everyone would benefit from therapy so in going in with willing to be involved.

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Jeff_AKA_Snoopy
10/13/22 5:36:32 PM
#95:


First joint therapy session was today. It was really nice. It was nice to talk with him about my guilty feelings about planning for after my wife dies and just my understanding why my wife needs to do this and the logical part of me that is OK with it and the pure devastation it leaves me feeling.

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TaylorHeinicke
10/13/22 5:39:56 PM
#96:


therapy is good. keep pushing TC

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Ryven
10/13/22 5:58:15 PM
#97:


TaylorHeinicke posted...
therapy is good. keep pushing TC


Yeah this absolutely. No shame. Good on ya TC.

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Jeff_AKA_Snoopy
10/14/22 5:32:50 PM
#98:


Therapy is wonderful and I think everyone benefits from it. Just a bit cost prohibitive and the fact that free services I don't want to take up since before this whole thing my mental health was in enough of a positive place that I didn't feel right taking up a spot someone else could desperately need.

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Jeff_AKA_Snoopy
10/15/22 2:47:57 AM
#99:


Listening to some sad music to let out some tears tonight.

https://youtu.be/KtlgYxa6BMU

It is just so unfair. I'm a logical person. We all die. Some of us get hit by a car and die when we are 10. Some get cancer. Some are struck by lightning. And at the end of all those things are dozens of other lives that continue on. It's kinda the whole fucking state of existence.

All that fucking logic means nothing when you're in the shit together.

My wife played Japanese crane games. I use past tense because they kinda suck now so she doesn't play them as much anymore. She won over 300 items. We have many of them displayed in our living room. It is a lovely collection and I adore them. I have weird thoughts now like, am I gonna adore them when my wife passes? Are they going to make me smile every time I see them and remember the pure joy in her face when she won? When they came here? Or are they going to remind me I won't get it again you know?

I hope the first... and I think that is truly what will happen. But it's a scary thought that the latter could be the case. And really how stupid is that thought anyways? Why am I concerned about anything like that?

Grief is a weird process, especially when you are grieving something that is yet to come.

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spikethedevil
10/15/22 3:56:48 AM
#100:


*hugs*

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